Haemophilia is a rare hereditary bleeding disorder disease. A person with haemophilia can have a bleeding episode internally or externally. The bleeding is the result of a missing protein factor that doesn’t allow blood to clot properly. Plasma or factor products must be used to stop a bleeding episode.

The public does not know of this disease and most doctors are not familiar with haemophilia or its treatment. The media only reports on haemophilia on World Haemophilia Day, April 17.

There are a few haemophilia welfare societies that assist haemophilia patients, but the problem is massive in rural areas, owing to transportation and economic problems.

The haemophiliac suffers greatly when he doesn’t have access to proper medical care. Many of those haemophilia patients, who use plasma to control bleeding, have become infected with hepatitis B and C. Who will assist us? Who will stand with us?

We appeal to the government to take a more proactive role. It is my hope and prayer that someone will come to our aid.

Administrator

Save the Haemophiliac

Karachi

Published in Dawn, December 2nd, 2015